Marrowforums is proud to announce its tenth anniversary today, August 1, 2016.
was launched on August 1, 2006
. The purpose of the website, then and now, is to let bone marrow failure disease patients and family members support each other with discussions, stories, questions, answers, suggestions, and personal advice.
you can find disease information, help with terminology, links to resources, self-help tools, and of course our discussion forums.
We focus on the rare diseases of aplastic anemia
, myelodysplastic syndromes
(MDS), paroxysmal nocturnal hemoglobinuria
(PNH), and related diseases such as pure red cell aplasia (PRCA). While treatment of these diseases has advanced each year since we started, they are still not preventable or curable without bone marrow or stem cell transplants. The need for patient support continues.
We serve visitors and forum members from all over the world. Most are in the United States, the U.K., Canada, India, and Australia since we're an English-based forum. We've helped many people help each other, and we hope we can help you too.
How we've grown
When we started out in 2006, a few forum members began exchanging messages. The forums were visited by a few hundred people every month.
Now, in 2016, thousands of forum members have collectively made tens of thousands of posts, and 10,000 to 20,000 people read the forums each month. Only visitors who want to post need to register as forum members, so patients can get information from the forums without signing up. If you want to ask a question, registration is simple.
We provide a meeting place, but the discussions are initiated and sustained by you, the patients and family members who share, offer advice, and support each other. Your participation is what makes the forums work. We're proud to have served this community and are committed to continuing our support for patients and families.
Feedback from forum members helps us. Please tell us what you've gotten out of Marrowforums
and if the site has helped you.