View Single Post
  #5  
Old Mon Dec 19, 2016, 06:58 PM
Sally C Sally C is offline
Member
 
Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Hi Shellybean,
These blood diseases can be very hard to diagnose. My husband's CBC was normal in March, 2008. We found out at the end of Nov., 2008 that something was wrong - but the bone marrow biopsy was inconclusive. Usually AA comes on fast like his symptoms did - and MDS is usually a slower process - which also led to the confusion. He started needing transfusions in Jan., 2009 (blood/platelets) but was not diagnosed with MDS until April at the National Institutes of Health in Bethesda,Md. It was then a year and a half before his marrow presented itself with definitive MDS. Sometimes MDS, AA, and PNH can overlap which also causes problems with diagnosis.
I wish you well!
Sally

Last edited by Sally C : Mon Dec 19, 2016 at 07:21 PM.
Reply With Quote