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Old Sun Nov 13, 2011, 01:44 PM
Robi1Knobi Robi1Knobi is offline
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Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
again...

Do any of you have www.caringbridge.com websites? Its a great way to tell your story & also give updates to friends/family. I have a site on there, just type in /lindarobicheaux after the website.
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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