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Old Mon Nov 25, 2013, 12:32 PM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Hi Birgitta-A,

Thanks for the link, is it that the tests are not accurate for seeing iron in the heart, or that iron overload does not happen in the heart and mainly affects liver.
The drug insert(it is made in switzerland, and marketed in India under name Asunra), mentions increased creatinine levels as a very common affect. As you have suggested, weekly monitoring will be important, my mother will start with 100 mg(1 tab), and increase gradually over next few weeks.
Thanks for sharing your experience and information.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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