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Old Sun Mar 25, 2007, 01:15 AM
Loretta Loretta is offline
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Join Date: Aug 2006
Location: Hurst, TX
Posts: 69
Rose, Vidaza vs. transplant

I am glad you are responding well to Vidaza. It gave me a year of being transfusion free and my blasts eventually went down to 3%. I thought I would be the first Vidaza miracle! But 6 months later my blasts jumped up to 42% and I had progressed to Acute Myelogenous Leukemia (AML). This is a fickle disease. What works for one, will not work for another. What works for many months, may suddenly stop. Get a second opinion, from a hemotologist/oncologist who specializes in MDS. The Myelodysplastic Syndromes Foundation has a list of MDS Centers of Excellence and will answer questions, and even help set up appts. for you. <www.mds-foundation.org> Transplant is a scary thought, but be thankful for the several 10/10 matches, I am envious! Sometimes Hemotologist/Oncologist docs and transplant docs do not agree, so, its up to you to get second opinions, research and make those hard decisions. Loretta, in TX
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Loretta 58
MDS-RAEB dx 6/05
positive response to Vidaza 8/05 to 11/06
progressed to AML 11/28/06
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