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Old Fri Feb 23, 2018, 07:26 PM
Meri T. Meri T. is offline
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Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 174
Meds

This should be in the drugs section, sorry. I just wanted to list the meds I am on, and my numbers so others could compare similiarities in our medication. 8months post stem cell transplant, match related donor.
Gvhd liver, skin, eyes.

Prednisone 10mg daily (tapered down from 60mg in 4 months)
Cyclosporin 25mg
Endecavil 0.5
Voriconazole 50mg anti-fungal
Daiphen
Acyclovil 200mg
Edirocal 0.75
Equa 50mg
Magnesium 250mg
Brotizoram 25mg sleeping pills
Fosamax 35mg once a week- for bones.
Caronal - for headaches and pain

GVHD skin lotions: Heparin0.3% cream and spray,

GVHD eyes: Crapid, Flumetron, artificial teardrops, hyaluron.

and also blood counts, liver, kidney numbers for comparision:
WBC: 7.6
RBC: 4.37
HGB 13.9
HTC 43.6
Platelets: 136 L

Segs 80 H
Lym 16.5 L

Liver numbers (still very high):
AST : 92 H (13-33)
ALT : 97 H (6-27)
LD : 237 H ( 119-229)
ALP : 441 H ( 117-350)
y GT : 650 H (9-109)

Creatinine: 1.15 H (0.46-0.78)

I wake up at around 6, I feel a bit nauseous in the mornings after taking my meds, but after an hour or so of cycling around the neighbourhood, then coming home, do housework, I feel quite good. No guests or friends over, can't risk germs and infections. Sleep around 9pm or so. It's good to stick to a regular comfortable schedule.

Praying for everyone.

Meri
__________________
Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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