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Old Thu Feb 18, 2016, 01:42 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
I highly recommend the book "Coping with Prednisone" by Eugenia Zukerman and Julie Ingelfinger, MD for any one on high dose or long-term prednisone therapy.

It lays out what to expect with this "necessary evil" and has excellent suggestions on how to mitigate some of the nasty side effects.

It has been a while since I read it, but one thing I remember is that you want to eat a very low salt diet.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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