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Old Wed Nov 29, 2017, 10:52 AM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Sarah,

NORD hasn't yet announced their 2018 PNH Patient Meeting schedule. Chances are one of them will be in your part of the country.

The Aplastic Anemia & MDS International Foundation (AAMDSIF) will have a free Patient Conference in Indianapolis on Saturday, May 19, 2018. There are likely to be at least a few PNH patients in attendance. Registration isn't yet open.

Even if meetings sponsored by NORD, AAMDSIF, and the Aplastic Anemia & Myelodysplasia Association of Canada aren't in the midwest, they are only a plane ride away.
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