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Old Thu Sep 9, 2010, 06:29 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John used his central line (hickman) when he was on desferral. Ran it in for 8 hours during the night. The plan was to do it for 5 days and then take the weekend off. This worked pretty well for him. You should be able to use the PICC. When his line got infected, it was pulled due to an infection and he switched to the sub-Q. What a pain that was.

Make sure they give you single dose syringes versus the dosage all in one. You don't want to be hooking up the same syringe more than once. We had home health care come out to train us on the pump and hooking it up. We did the first dose in the doctor's office so they could make sure he had not adverse reaction.

You can also get it when you get transfused.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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