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Old Fri Feb 10, 2012, 05:19 PM
riccd2001 riccd2001 is offline
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Join Date: Aug 2010
Location: Burlington,Ontario,Canada
Posts: 186
Confirming MDS...

Sorry to hear your wife has gone through so much in the last month. But confirmimg MDS and what type it may or not be is still not easily done.

I went through a similar sequence of testing - but NO TREATMENT whatsoever (IMO it sounds like the "...neupogen injections after this biopsy..." were premature). It took about 8 weeks for me to get a confirmed low-risk MDS diagnosis. This was in early 2008. One would think things could be confirmed faster now, but maybe the progess hasn't been as good as we expected.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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