Thanks Neil and Lisa for your replies. Shauna thought her dose was down to 100 mg in the morning and 125 mg in the afternoon when she relapsed. I wonder if I was off about the "full" dose amount from two years ago because I can't figure out how we got from a total of 600 mg to 225 mg in two years by decreasing 25 mg every 3 months. I kept meticulous notes (spreadsheet) on all her CBC results but I'm kicking myself for not including specific cylosporine dosages. She has already decreased by 50 mg per dose this time because the cyclo levels in her blood are running too high, but so far CBC counts continue to increase.
Anyway, below is the link to an additional article about the development I linked earlier. This second article does a far better job of explaining exactly how the nanoparticles would be adapted to various autoimmune diseases. Apparently they have enlisted cooperation from the Juvenile Diabetes Research foundation and Myelin Repair Foundation to organize trials for Type 1 diabetes and MS. I hope that an organization like AAMDS would get on board as well.
http://vitals.nbcnews.com/_news/2012...mmune-diseases
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Kim, mom to Shauna, SAA 10/2007 at age 19, ATG/Cyclosporine 12/2007, end cyclo 4/2009, relapse 8/2010, and 9/2012, counts recovered on cyclo alone 300 mg/day x 2.
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