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Old Fri Jul 5, 2013, 09:13 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi and thanks for the replies.

Ellen, I will most certainly look up that protein.

I have spoken with my specialist and told him that my GP says that I'm dying. He agreed and said that he was grateful the GP had raised the subject because someone needed to.

There are a number of risk factors which I think are shared by every one on this forum.

Firstly, infection due to neutropenia (already aware). Secondly, requiring more blood, more often with less effect (why does this happen ?). Thirdly, multi organ failure from iron overload and chronic anaemia (already aware). Fourthly, aggressive return of MDS and quick conversion to AML (apparently he has discussed this possibility with colleagues). At this stage my platelets are ok and slowly dropping but are, hopefully, not going to be a factor.

I had a repeat Hb 4 days post transfusion and it was still the same at 85. I'm grateful it didn't drop. I have another blood test scheduled for Monday and I'm very impatient to find out if I have maintained a reasonable Hb.

I have developed very bad eyesight and can hardly see to type on this iPad. I have increased the font as large as I can. I can no longer read books (my favourite hobby) and although I can see the TV it's very blurry. I mentioned it to the GP and he said that chronic illness, tiredness and anaemia can cause this. Has any one else got this problem? I was concerned that the nerves to my eyes were being effected by my neuro condition. I have an eye test scheduled for Monday but my spectacle prescription was only renewed about 7 months ago. Here's hoping its just age related.

Regards

Chirley
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