Hi All,
I am new to this site and after hours of trawling through, you seem to be the only english guys on here?
I was diagnosed with SAA 7 months ago aged 30, 4 months after the birth of my 2nd son
. Until then I was in very good health. I was in and out of hospital for 2 months with repeated infections. I am currently being treated just with cyclosporin (150 twice a day) as Proff Marsh advised against ATG (very recent change in advice for patients of my age group apparently). My counts are pretty good, Hb 9, platelets 27, WCC 3 which is a massive imporvement. I have not had a blood or platelet transfusion for 6 weeks after needing them every 10 days for the 1st 4 months.
My question is, is anybody else just being treated with just cyclosporin? After the devastating diagnosis and everyone telling me that there was no cure except BMT, my counts have improved so much and it all seems too good to be true at the moment...
I am in Reading and would love to know if anyone on here is anywhere close.
Thanks
Polly xx
