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Originally Posted by milliken2
Pete;
First of all - welcome to the Forum. This is a wonderful place to share and learn.
Secondly - speaking as an RN - are there no hospital is Sydney that have better treatment options? Of course - we would welcome you to the states - but as a precaution - I would do an online search to make sure your insurance covers the cost of treatment. St. Jude's Hospital is a wonderful cancer facility for Pediatrics - and here in the states - Peds is considered to be up to the age of 18 and in some states 21 years old. In my opinion, I would check it out first if you are seriously considering coming stateside for treatment.
Make sure you check out the AA/MDS Foundation website - there is a lot of material there to learn.
I wish you all the best of luck in whatever direction you should take.
Beth
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This is the AAMDS website.
http://www.aamds.org/
Contact Leigh Clark there. She will be a great help. You can email her for a start. help@aamds.org or clark@aamds.org
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Last edited by triumphe64 : Sat Jul 7, 2012 at 11:24 PM.
Reason: Adding remark about email.
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