I also have aplastic anemia. I completed the ATG treatment in October. I am still waiting for a response and have a 10/10 unrelated donor waiting for me in case this treatment does not work. I did purchase a book on herbal remedies. It is titled ConquerLowPlatelets.Com. I wouldn't suggest taking any herbs without consulting a doctor because they may interfere with your treatment or have harmful results. I am going to consult a specialist about this because I was thinking of taking herbs if all else fails or possibly before the transplant. The book is interesting and the author represents how it is important to cure the root of the problem which usually begins in the organs such as the liver digestive system as opposed to suppressing the problem with cyclosporine. The author also mentioned testing the liver and digestive system. Different herbs sound great but not with medicine interactions. I really don't know the answer myself but I wouldn't take any herbs without consulting a specialist. I'll let you know what happens when I see the doctor about it. Good Luck
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Originally Posted by Hayitsmenadine
Hello everyone,
My name is Nadine and I was diagnosed with aplastic anemia and PNH in May of 2010. I am currently on Soliris and shark liver oil. I was on cyclosporine for 14 months and as of December 2011 I have been blood transfusion free. My levels are still on the lower end but are manageable. My platelets have been dropping and rising which led to me to seek alternative treatments.
Yesterday I went to see a holistic dr referred to me by a family friend. She said she was able to pinpoint the cause of my disease and how to treat it. Apparently I have formaldehyde toxicity in my liver. My spleen is overproducing red blood cells that my liver isn't breaking down. She did some pressure points on my liver and spleen to get circulation going and prescribed me cardio plus pills. I was also told not to eat any products with sodium nitrate (packaged lunch meats and subway.)
I am a very open person to new ideas and I am remaining hopeful that in 8 weeks I should be fine again, as she said. I am just wondering if anyone else has seeked out holistic treatment and how their experience was? I will keep everyone posted about how this whole treatment pans out.
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