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Hi hopeful, thank you for the reply. She takes weekly blood tests so we have been monitoring the downward trend for awhile. Other counts were bouncing around a bit, but I believe are okay for now.
She refused to do BMB couple weeks ago when Dr offered so he sympathized and said lets see how the counts are in a couple more weeks. But looks as if she will be having it done by end of month. Depending on the next two tests.
Anyone out there have any luck with just using Cyclosporine to help counts rebound?
Her initial response to immunosuppression went very well (besides serum sickness) so I'm surprised she is headed out of remission so soon. Dr said this treatment should of lasted several years.
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Bobby, sister dx Mild AA small PNH clone 6/2010; ATG+Cys 9/2010; slow taper 1yr+, counts good until 2/2013; BMB 7/2013 no change in disease. CsA started 8/2013 and counts on the rise.
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