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Old Sat Oct 24, 2015, 08:32 AM
AA_BMT_info AA_BMT_info is offline
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Join Date: Jul 2015
Location: US
Posts: 2
Thanks for the replies everyone. They did find matches for her but she did not do well during the neurological exam. She will not be given a BMT due to impaired cognitive function. Short term memory is really bad.
Atgam, cyclosporin, promatca (eltrombopag) have not helped her counts. She needs transfusions at least twice a week. Her picc line was in over a year. She has a blood infection and they believed the picc to be the source so they just removed it and put in a new one in her other arm. Sloan Kettering docs gave us contacts at NIH so she can take part in clinical trials there. Its her last hope. She asked about a prognosis and a doctor gave her months to live.
I will be reading posts in the clinical trials section and post any questions that I have there.
Thanks
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