Thread: Day +45!!!!
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  #5  
Old Mon Jan 25, 2016, 12:27 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Like many others have already said, normal can take a while and may mean something different to each person. My blood counts weren't normal until about November 2015 - transplant was February 26, 2014. Even then, my HGB is below the actual normal range of 14.2, but it is hanging out around 11-12, which to me is great. I have not required but one transfusion in the nearly 2 years since transplant, which is my measure of success, along with remission of course.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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