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Hi cvigil,
I am so sorry you are going through this and now faced with all of these decisions. I was in your shoes almost exactly a year ago, however it is my wife rather than my son that is the patient. I would not hesitate to get a second opinion, and would do the research on where you want to go and then make the appointment as soon as you have decided.
When my wife was diagnosed with AML we wanted a second opinion so we went to MD Anderson, and they said it was MDS. We are so glad we did because MDS is very tricky you really need an expert that sees a lot of cases. Even if you are impressed with the doctor that is working on the diagnosis, I would get a second opinion.
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Chad, husband of Danielle age 39, diagnosed MDS (RAEB-1) Feb 2013, BMT May 2013
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