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Old Sun May 13, 2012, 10:54 PM
Flamingo Jim Flamingo Jim is offline
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Join Date: Sep 2010
Location: Saint Louis, Missouri
Posts: 33
How Long Till Liver GVHD Permanently Goes Into Remission?

I am 20 months+ post transplant from a perfect donor match from my brother. The only issue I have had is flare ups of liver GVHD which only show in the blood work with high ALT/AST levels. When it happens, they up my dose of Prednisone around 20mg, the liver enzymes return to normal, and they taper me off Pred. But before I go all the way off, the liver flares up again and I go through another cycle.

For those of you who have had liver issues, how long does it take before the flareups end and your donor cells stop attacking your liver

And a more general question, how long does it take to completely get off all drugs, on average, if you have gone through standard treatment of care and have had relatively few post transplant issues?
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Jim, MDS RAEB-1 with rare t(6;9)(q23;q34) translocation resulting in DEK-NUP214; dx August 2010 at age 45; SCT Sept 30, 2010 with male sibling match. Follow Progress at http://jimschmitz.wordpress.com/
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