teo,
These are all the top doctors in bone marrow failure as authors.. I go to Dr. Maciejewski, one of the authors.
Dr. M. tells me there are four or five treatments available to me in case my drug treatments fail. I suspect they became available after I started treatment. I don't know what the preference is.
My Hg has reached the lowest part of the normal range for a year now. Because of that, they are not about to change treatment at this time for me. If I were a new patient, they might have a certain one in mind.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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