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All of these treatments are a trade off of some sort for the effects and side effects..
I only take 2 1/2 mg prednisone every other day. When I took none, my Hg dropped. My doctor here in Dallas says she has many patients who take a very small dose of some med that seems to do more than it should.
Sometimes PRCA is really LGL. It is important to know, even though the treatment is the same.
EPO is not a good treatment. It is an old treatment. If you research causes of PRCA, you will find EPO can actually cause PRCA. I wonder why Lance Armstrong and his friends all escaped this side effect or high levels of ferritin from transfusions. But I digress.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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