Thread: Jadenu
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Old Mon Jun 27, 2016, 08:19 AM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi Beverly - I too Jadeneu for about a month or so prior to my transplant - My ferritin was around 1500. I tolerated it well - didn't notice any side effects. I'm not sure how well it worked in lowering iron. Post transplant, after many more transfusions, my ferritin peaked at over 5000 - its was around 4000 last month and there was talk of starting phlebotomies - Since my hemoglobin is up in the normal range - they will prefer to go that route and avoid giving me another drug to add to the fistful I'm already taking - but Jadeneu was not a problem for me.
Best wishes,
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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