Hi Deeno.
I work for The MDS Beacon, a website for MDS patients and caregivers. In addition to articles on new treatments, we also publish interviews with MDS patients.
I've interviewed two patients who chose not to pursue aggressive treatment for their MDS. You can read about their experiences here:
http://www.mdsbeacon.com/news/2011/0...-charity-work/
http://www.mdsbeacon.com/news/2011/0...ive-treatment/