View Single Post
  #3  
Old Sat Jan 26, 2013, 10:53 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Quote:
Originally Posted by Darice View Post
Have many here been able to go?
My wife and I have been to a number of them, starting in 1998 and most recently in 2012.

Quote:
Was it valuable to you? Did you learn much that you haven't been able to find out through other sources?
Even though my wife and I stay informed about these diseases, we learn new information every time we go to a patient conference. And the chance for patients to hear from so many of the country's leading experts and ask them questions is hard to beat.

Quote:
Or was it more moral support . . . actually talking to people facing similar issues?
That too. We've made new friends at each conference and when my wife was sickest we really depended on those friendships and kept each other's spirits up.

Too bad there's no conference in Denver (or even Albuquerque) this year, which would be a lot easier for you to get to.
Reply With Quote