View Single Post
  #9  
Old Mon Aug 8, 2016, 09:13 AM
KatailS KatailS is offline
Member
 
Join Date: Apr 2016
Location: Avon, CT
Posts: 41
Update

I had my appointment at Dana Farber a couple days ago.... was very impressed overall. My pathology was reviewed and good to see that the local path report and the DF review were very much the same. My doctor has provisionally labeled me as moderate aplastic anemia. He did order a rapid heme, CBC, LGL panel and recommended to have my telomeres checked.
Path report reads "the findings could be compatible with idiopathic or or primary aplastic anemia, if other causes of secondary acquired aplastic anemia are excluded. Given the reported macrocytic anemia and mild dysmegakaryopoiesis the differential diagnosis includes an evolving hypoplastic myelodysplastic syndrome"
Could be better, but could be a lot worse.

All in all it remains a wait and see.... bloodwork every 3 months. Checking in with my local hematologist later this week. Good to know I have good doctors keeping an eye on me.
__________________
Kathie - 54 yr old mother of 4, pancytopenia since 11/2014, moderate AA 8/2016, small PNH clone (now increasing), monitor bloodwork every three months
Reply With Quote