Hi Ziad,
You know low platelets are always a big problem for us. There are no drugs approved for MDS patients but patients with another disease (Immune Thrombocytopenic Purpura) can get Promacta (Eltrombopag/Revolade) or Nplate (Romiplostim). Unfortunately they can both increase bone marrow fibrosis and Nplate can increase blast cells (immature cells).
There are still no reports about Promacta. Here is one about Nplate:
http://www.pslgroup.com/news/content...2578990056E556
Several members of this forum have had positive effects when they are taking these drugs.
Many patients with MDS are getting platelet transfusions. It is true that they don’t last many days but it is better to receive transfusion than have a serious bleeding.
Kind regards
Birgitta-A
72 yo, dx MDS Interm-1 2006. Transfusion dependent from dx with HGB 7.0 Received 142 units of blood until I started treatment with Thalidomide 2010 with very good results. HGB now 13.5 and platelets have increased from 22 to 90.