Thread: What to expect?
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Old Thu Sep 19, 2013, 07:02 PM
vikasgoyal vikasgoyal is offline
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Join Date: May 2012
Location: nashville,TN
Posts: 58
4months back he needed 2units in every 2months when hgb used to come down to 7. Since last couple of months he had to take 2units in every 6weeks and hgb fell to 6. This time shockingly its been only 4weeks and his hgb stands at 5.5 which is very frightening. Doctors are suggesting Revlimid which i am not sure will work for patients w/o -5Q. We are completely lost and really do not not what should we be doing. Like i mentioned before he has no other issues apart from low hgb. He had a very high ringed sideroblast percentage when we got his bmb done last year. Should we get his copper/zinc checked?Any suggestions will be welcome.
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Father 72, diagnosed MDS RCMD June 2011. HGB 5.5, WBC 7.2, Plt 400 Cytogenetics Normal. Blast cell count 2% ( July 2012 ). Currently on Danazol, Ferritin 750
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