Yes Vikas, we are in Delhi too and feel the same way, there are no specialised MDS centers and very little awareness of the various issues that can come up at any time. Mumbai seems a bit more equipped to handle MDS, we have consulted various doctors and the conclusion is that transfusion led supportive care is the preferred line of treatment. Atleast it does not involve pain or much discomfort.
Even on this forum there are people who have multiple transfusions over many years so dont lose hope!! 
__________________
Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
|