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Great to see a post from you Sharnie. I remember when you were going for transplant.
When my specialist said 30% that was without ongoing GVHD so yes we are pretty much in agreement Sharnie. I don't stress about statistics either - was originally told 18 mths to 2 years and it's now almost 3 years since diagnosis and I am feeling better than I did then, and am stable except for white cells, for which my average drops about 0.5 every year so far. MDS is a certainly a highly individualised disease.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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