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Umatr - You're doing the right thing by learning as much as you can. Knowledge is power and gives you the ability to ask intelligent questions when visiting your specialist.
I have monthly pathology done - your husband may have it more often. I find it really useful to keep an Excel spreadsheet with charts of the lower/higher than normal results so I can see at a glance how I'm going. I keep a running average so I can compare this year with previous years. Would that be helpful?
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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