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Carole, the sooner you start treatment the better. I was golfing (walking the 6 miles) all through the Vidaza ttreatment for eight months. I led a totally normal life throughout the Vidaza treatment. The Vidaza saved my life. My counts came back to normal and I was in excellent condition going into the SCT. It makes a significant difference to be feeling as good as possible. MDS doesn't seem to wait for anyone.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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