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Hey guys, just wanted to update you. BMB came back, no progression or mutation! It is still AA with small PNH clone and chromosomes are normal. So that is very good news, counts are holding steady at what I mentioned earlier. Currently just watching and waiting, no meds yet. She feels and looks just fine, so hopefully counts begin to rise a bit on their own.
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Bobby, sister dx Mild AA small PNH clone 6/2010; ATG+Cys 9/2010; slow taper 1yr+, counts good until 2/2013; BMB 7/2013 no change in disease. CsA started 8/2013 and counts on the rise.
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