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Wow, our doctor from Moffitt responded on Saturday - that's a first from any of our doctors! He said it would be okay for Al to take the Amicar (the medicine to help with clotting) even though he's on the clinical trial. It was reassuring to get a response from him today, even though I felt better after reading on the forum about others who have had problems with blood blisters in their mouth.
Thanks again to all.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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