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Old Mon Apr 15, 2013, 06:47 AM
MDSPerth MDSPerth is offline
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Join Date: Sep 2012
Location: Perth, Western Australia
Posts: 74
Scarlett,
In July last year Paul went for routine blood tests then aged almost 62. We were shocked when the next day he received a call referring him for further investigation as he did not have symptoms of anything wrong. After a BMB He was diagnosed with MDS (pancytopenia neutrophils at .35, platelets at 24, and HGb at 102). He has/had monosomy 7 and +8 in about 9 of the 20 cells tested. Almost immediately he was started on growth factors and they kept him in good health and transfusion free for 8 months until a very good donor match was found.

We are now at day +11 post transplant and he is astounding the medical team with how well he is coping. They are putting a lot of it down to the fact that with the exception of the growth factors he remained medication free.

Paul is being treated for hypo cellular MDS and has no blast cells. If you get the opportunity for transplant, the younger the better I understand.

Good luck,
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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