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Old Sat Aug 17, 2013, 11:57 AM
BobbyJD BobbyJD is offline
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Join Date: Jul 2013
Location: New Jersey
Posts: 11
Cyclosporine without ATG

Hello, was looking for some personal experiences with Cyclosporine on its own without another round of ATG. My sister's counts have been trending down for the past 6 months (ATG + Cyclo in 9/2010). Counts were pretty good after treatment, but now Platelets are around 50, white and red low but not dangerous and neutrophil below one I think.

Just had a BMB a few weeks ago and there has been no mutation in the disease and chromosomes are normal. That being sad she has just started taking Cyclo again this week to hopefully push the counts upward.

Any one have a positive or negative experience using just Cyclo alone to raise counts?

thanks
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Bobby, sister dx Mild AA small PNH clone 6/2010; ATG+Cys 9/2010; slow taper 1yr+, counts good until 2/2013; BMB 7/2013 no change in disease. CsA started 8/2013 and counts on the rise.
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