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O that makes sense thank you! Yes as soon as my husband was dx w AA we were a little less focused on the PNH also. His Solaris seemed to be keeping the PNH steady but the AA was all over the place.
We were told if he does ATG it will probably make his PNH clone go up. It did a little also.
Hope your sons doing well!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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