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Old Sun Dec 9, 2007, 08:45 PM
Connie C Connie C is offline
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Join Date: Dec 2007
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Connie C

Hi ya'll. I've never used a forum so be patient please! Totally confused. I was diagnosed with MDS5q- in 1990. I am now 58 years old. Had 2 units red cells every other week (Sometimes more) for 8 years. Also on Desferal at that time. In '98 started making red cells again and have had no more transfusions to date. Have iron overload and not supposed to have any organs intact because of that but still here after 17 1/2 years. I was on the Epogen study about a year after getting sick, didn't help. Tried Exjade for the overload when it first came out, had problems. So basically, I just keep on going on living second to second, although I feel like I'm 108! Doctors are perplexed but after all I figure I got to raise my 3 sons so I can't complain.
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