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Hi Greg, just wondering are they treating your copper deficiency? If so, what are you having?
I've been in hospital for nearly a week with copper deficiency induced myelopathy. I have been unsteady on my feet for a while but I became unable to walk very suddenly last Monday.
I know the relationship between copper and pseudo MDS and was excited to think that I may not have MDS at all, but unfortunately my haem doc says I definitely have MDS.
I'm waiting for test results to check for copper storage diseases then, I may have some intravenous copper and maybe some IVIG.
Tea and cake has arrived.
Bye
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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