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Uh oh, does your doctor know you've stopped cold turkey? I agree with Karenish, not a good idea. I'm sure you feel better and may even be seeing a little bump in your counts for the moment, but it could come around to bite you in the backside down the road. I know this is not what you want to hear, but I've seen it happen too many times with others, and they end up paying dearly for it. ALWAYS include your doctor in any treatment decisions!
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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