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Old Mon Apr 20, 2015, 09:34 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by sstewart09 View Post
There are a few haplo patients on some of the AA Facebook groups. Help Aneesa and Match Nolan are 2 that I know from the top of my head.
There is also a guy on FB named Paul Witzgall. I'm sure he will let you know. Quite a story, he has.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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