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MDS on top of HIV
Folks -
Just joined after reading many posts. My recently-dxd husband Alan is a long-term HIV survivor (since 1992) and we haven't found much information/experience concerning folks who have both MDS and HIV.
Our consultation at Duke revealed that there aren't any MDS clinical trials which would accept HIV patients, and Alan isn't considered suitable for an SCT at this point. They'll reevaluate in early January after five courses of Vidaza and a second BMB, presuming we make it that far.
Do there happen to be other folks here dealing with both MDS and HIV? Thanks...
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Dave age 70, husband of Alan age 67 who was a 25-year HIV survivor and was dx with MDS RAEB-1 5/24/17. Vidaza started 8/7/17. It was ineffective. Passed away 2/7/18.
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