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Old Mon Aug 4, 2008, 09:52 PM
Steve Kessler Steve Kessler is offline
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Join Date: Aug 2006
Location: Bellevue, WA
Posts: 71
If you're in Southern California

One of the premier MDS docs is Ron Paquette at UCLA. E-mail paquette@ucla.edu. You might onsider him for a second opinion. By the way, what your dad's doc has done so far sounds entirely reasonable, he sounds knowledgable and aranesp is a good starting med for a condition that seems to have not progressed far. Stay hopeful. With new meds, many MDS patients live far longer than the old statistics (pre- effective drug days) predicted.
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Steve Kessler,Age 71, Dx 3/2001, Currently AML converted from MDS, 5q-, 11q23, Negative response to Aranesp, Revlimid. Partial response to Vidaza in the past. On a study using ON1910.NA, counts too low to go to Stanford on schedule.
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