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Old Wed Aug 8, 2012, 05:01 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi Chris, I was also told that I didn't present as a "normal" copper deficient person.

My haematologist looked back on all my previous BMBs and blood tests and said there was no indication of copper deficiency in any of them and that's why they hadn't done a copper level.

I was started on prednisone at one stage when I had an infection and my neutrophils did respond but it was not a lot and it was a very short-lived response. I was never given G CSF because my haematologist believes that it can increase the blast count. I know that there is research that seems to show that it doesn't have a negative impact on blast counts but my haematologist is still very wary.

I too hope that your wife's copper level is low and she just needs some replacement but if I'm honest it could be just clutching at straws. Better to check and see and if it's not copper deficiency, then you can move on and try to find another cause.

Good luck to both of you.

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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