[rar]

My eye problem is pain, vision that gets very fuzzy, light sensitivity. Eye doc says it is "dry eye", of course. It is getting better slowly. My whole body itchy rash is gone, my mouth is getting better. I had been down to 5mg pred every 3 days and as soon as I stopped I got the GVHD. They are concerned with the GVHD because last time I had it it was stage 4 that removed the lining from the gut with 2 months in the hospital. They told my wife that they see a lot of people who were not as sick as me die. My thoughts is to taper quickly to a low dose than taper more slowly. They say some have to remain on pred indefinitely. I think what I have fits the classic GVHD symptoms.

How long were you on pred? How rapidly did you taper? From the way you write it sounds like that maybe you didn't relapse but got a different condition?

Thanks for the response.

Ray