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Old Fri Oct 7, 2016, 02:28 AM
Eva's daughter Eva's daughter is offline
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Join Date: Oct 2016
Location: Perth, Australia
Posts: 23
Mum, 64yo just been diagnosed with RAEB 2

Hi All,

Mum has just been diagnosed with RAEB type 2. Needless to say that I am utterly beside myself as she is not only the best mum in the world, she is also my best friend and best buddy and Nanna to my 1 yo son. From all of the things that I have read, I know that she doesn't necessarily have long. She starts Azacitidine next week. Her platelets are very low.

I have so many questions.... I'm not ready and for that matter, nor is she ready to go yet.

Here in Australia, they don't offer stem cell transplants for older people. I know stem cell transplants are very risky but do they do them in other countries for RAEB 2? Is it even an option with RAEB 2?

My Mum has been super fit and healthy all of her life but now she is bruising easily, getting short of breath and very tired all of the time. Its hard to watch her decline so rapidly.

Is there anything I can do to ease the situation? She has always thought of herself as indestructible and this is really getting her down.

Any advice would be greatly appreciated.

Best,

Emma (Eva's daughter)
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