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Old Mon Oct 10, 2016, 05:10 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Emma - It's always sad to hear of another MDS diagnosis. Please don't despair yet.

I live in NSW and was initially diagnosed with RAEB2, but my blast count dropped without treatment and I was reclassified as RCMD which is where I've stayed for four and a half years now. I was headed for a bone marrow transplant at age 64. The haematologist at Royal North Shore Hospital (Sydney) told me they would do transplants up to the age of 70. I'm not sure what the situation is with stem cell transplants. How old is your mum?
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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