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Old Tue Oct 11, 2016, 05:34 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Emma - Yes, there are very few Aussies on the forum at present. Welcome I'll be watching for your posts.

At 65 your mum isn't too old for a transplant yet, if she doesn't have any co-morbidities which would mitigate against it. Sounds as though she's always been very healthy, which was the case for me too. I have never smoked or drunk alcohol and was brought up eating lots of fruit and vegies and pretty much dairy free. I follow a low-sugar diet too because low white cells/neutrophils/lymphocytes are my main problem. Even though I don't feel like it sometimes, I try to go for a walk in the fresh air every day. The main different thing I did was retire and take a long holiday about 6 months after diagnosis. I had a high-pressure job in the inner city (Sydney) when I was diagnosed.

Has your mum had her Vitamin D3 and B12 levels checked? I find that taking D3 definitely improves my platelet levels. Mine have been in normal range most of the time since I started supplementing.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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