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bailie,
Being an "interesting" patient is less than ideal. I'm sorry they don't have more experience to know the ideal way to tailor your treatment.
My wife was also considered "interesting" to the hematologists at her treatment center. She was a topic of discussion at each of their team meetings. It was nice to have their combined expertise on our side, but there's no honor in being the first person with a particular combination of genetic abnormalities.
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