Thread: going on exjade
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Old Wed Apr 18, 2012, 10:54 PM
riccd2001 riccd2001 is offline
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Join Date: Aug 2010
Location: Burlington,Ontario,Canada
Posts: 186
Exjade side efffects? Count on it!

As always YMMV. If you read the long list of side effects that Novartis says are possible, you'll have a good idea of what to expect. However, it does work and for me my doc wants me on it when serum ferritin is over 1000. Do make sure your doc Rx is in line wth your weight and don't exceed that dosage. Good luck!

[Forgot to mention an important effect: Creatinine level is one thing to keep a close eye on when taking Exjade. It's a bit of a balancing act to keep serum ferritin under control and Creatinine at an acceptable level. Make sure the regular CBC Lab test also includes a test for Creatinine.]
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).

Last edited by riccd2001 : Wed Apr 18, 2012 at 11:05 PM. Reason: Monitoring Creatinine level when taking Exjade...
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